Clinical Coordinator in Rare Diseases (M/F/X)

As a clinical coordinator, you will play a key role in improving care pathways, coordinating stakeholders, and showcasing institutional expertise.

🎯Your mission :

Within the Rare Diseases Institute of Cliniques universitaires Saint-Luc, the coordinator contributes to strengthening care coordination and promoting institutional expertise in the field of rare diseases, as part of the second National Rare Diseases Plan.

Working closely with medical teams, expert centers, European Reference Networks (ERNs), patient associations, and institutional partners, the coordinator focuses on two main areas:

• Care coordination: ensuring the continuity of coordination activities, facilitating patient referral to appropriate resources, contributing to the improvement of care pathways, and supporting initiatives that promote the transition from pediatrics to adult medicine.

• Mapping of institutional expertise: identifying and documenting rare disease expertise within the institution, organizing the collection and analysis of information, collaborating with medical teams to validate data, and ensuring the operational follow-up of the project and its deliverables.

This role thus helps to strengthen the visibility, structuring, and accessibility of expertise in rare diseases, while fostering better coordination among the various stakeholders involved in patient care.

🚀Would you like to put your skills to work for a meaningful mission and actively contribute to improving the care of people living with rare diseases? Join us and actively participate in a collaborative project at the heart of tomorrow's health challenges!

🎓Required qualifications and experience:

• You hold a Master's degree in health sciences, biomedical sciences, public health, healthcare management, or an equivalent field.

• You have an initial background as a nurse or in paramedical fields (an asset)

• Experience in the hospital, academic, or clinical research sector is desired. Experience in project coordination, care organization, or health data management is an asset. Knowledge of rare diseases and the Belgian healthcare system is appreciated.

✨Essential skills:

• You have excellent writing, analytical, and synthesis skills; good command of Microsoft Office tools; ability to collect, structure, and analyze data, manage multiple projects simultaneously, and meet deadlines.Knowledge of REDCap and EPIC is an asset.

• You demonstrate excellent interpersonal skills, team spirit, autonomy, proactivity, rigor, organizational sense, and the ability to collaborate with various stakeholders.

• You have an analytical mind, pragmatism, solution orientation, flexibility, stress resistance, and strict respect for data confidentiality.

• You have an interest in rare diseases and the improvement of the quality and organization of care.